My husband has gotten colon cancer twice since taking this drug and is currently on Chemotherapy with a stage 4 diagnosis

I am a MS patient. I was prescribed Tecfidera in March of 2014. I tried for 2 years to go onto the full dose. I was unsuccessful. The problem was that the medication was destroying the inside lining of my stomach. In November of 2017 I had medical procedure with a camera in my stomach. This test confirmed the damage. Presently, discussions are continuing concerning surgery to repair the damage caused by Tecfidera. I stopped taking Tecfidera in May of 2017 against the advice of my Doctors. I would be interested in efforts to inform the public about the potential damage that may present to other patients.

I’m a MS patient. Started Tecfidoera May 2019 for only 6 days. The horrid side affects from day 1 and I was told by my nuerologists staff to just push threw trial pack. Again by day 6 I took myself off it for the pain around my right eye almost fully took my vision. Still having complications. Other affects I had were, massive drooling, unbalanced walking, felt drunk, slurring words, swollen tounge , wanting to fall over and more. Today finally contacted a laywer waiting to hear back because I want to sue the neurologist. Never once on any phone call did they say stop taking Tecfidoera and here we are in July- End of my rope .

I lost 8 teeth while on Tecfidera. I posted it on the Tecfidera support groups and it was amazing how many people, world wide, had severe dental problems like me. My dentist found that Tecfidera had caused the nerves in the teeth to calcify, which killed the teeth and caused them to fall out. I have advised MS patients to contact the FDA so we could hold Biogen responsible. Now I need implants and dental insurance doesn’t cover that. I no longer take any DMD’s for MS.

I started taking Tecfidera on 18th November 2019 & immediately started to experience debilitating side effects. At the time the Neurology team had assured me that the drug was safe. I was persuaded to continue by Neurology Team, but then further problems developed, leading to me stopping Tecfidera altogether by end of January 2020. It was at this point my liver started to struggle, my LFTs became ‘deranged’, leading to peripheral oedema, my TSH became erratic, I developed hypertension despite being historically hypotension, suffered excruciating abdominal & back pain, severe joint pain etc. I furthermore gained 20kg in weight in under a month & became morbidly obese. I was eventually placed on diuretics in July 2020 which resulted in me losing 5kg in just 2 days. I was referred to gastroenterologist with speciality in liver disease who was of the opinion that I may have liver failure & heart disease. It should be noted that the Neurology team were in regular contact with the medical advisor at Biogen but failed to give me any feedback. A diagnosis of ‘transient hepatitis secondary to Tecfidera’, followed in September. The Neurology team have been noticeably absent throughout the year. They were clearly negligent & in cohorts with both the gastroenterologist & Biogen, & have tried to redirect my attention/the focus by telling me that I had heart failure and that my health problems were self inflicted, based on a diagnosis of COPD many years ago. It should noted that heart failure was ruled out following extensive tests. I was relatively fit until I started taking Tecfidera but now experience poor health.

I have MS My Dr Neurologist Team perscribed me to take Tecfidera there is a recall on this Drug medication that he perscribed then he perscribed another Generic Brand named Dimetjol fumerate it made alot of things worsen for me such as not being able to walk or run at all I had to be carried upstairs by the ambulance and the Fire Department The neurologist Team guaranteed me that Tecfidera would help me to walk and run again with no problems at all my number is 302 762 1950
Lorraine Williams is my name ok