I was diagnosed with chrones disease in 11/2008 never had any health problems never had been in any health problems till then went to dr recommended Humira supposed miracle drug immediate systems started getting blister inside mouth throat and digestive track was getting very ill couldn’t digest food properly would double over in pain starred taking humira 4/2011 took it until 11/2012 was scheduled for surgery 12/27/2012 has a flare up the day of surgery had to be post poned rescheduled surgery and also hospital actual surgery was 1/14/2013 had several infections in gastro track and also developed fistula’s had illeostomy done was in and out of hospital for several infections spent most of 2013 in hospital was discharged from hospital 12/2013 was released to go back to work 1/2014 I was a truck driver was told by employer that I was not needed so I went for dot recertification physical and failed because of very rapid heart beat was told to go see cardiologist and was diagnosed with cardiomyopathy heart failure never had any problem with my heart now in 11/2014 was told my heart was only pumping at 15% normal heart pumping is about 60% told that I could drop dead by cardiologist at any moment put it off as long as I could the symptoms got worse went back to dr in 6/2015 was told that my heart was getting weaker told it was now at 7% was told didn’t have much time put on transplant list I now have an electric pump inside it is Heart Mate I
Drs agree that it was caused from Humira I can’t believe it’s. Still on market I feel that they gave me a DEATH SENTENCE was never told the side affects seen on TV asked dr and he said he would ask the company and they told him that the odds were astronomical 1to 1 million and said not to worry who can u trust ur health I feel like I was experiment I think someone should pay my life has been pure HELL the last 3 yrs

I have been taking humor for over 5 years for sarcoidosis. I had to have an eye surgery last year. I have vision issues as well as high pressures in my eyes. Sometimes my eyes hurt really bad for no apparent reason. My left eye has began to have hi eye pressures and my Dr stated that if we can’t get them under control I will need to have surgery on this eye as well.. I take humor once weekly

I am considering Humira for my colitis. I was surprised to hear that one shot of Humira would stay in your system for 5 months. I’ll need more information.

my dtr. died last month from met. melanoma, after 2 years on humira. I believe humira caused her cancer and death.

I was on Humira for Crohn’s for about 4 years. It certainly helped Crohn’s but some of the side effects were not good. Developed warts which popped up everywhere. Have had 5 skin cancers detected and removed. Developed shingles and it was a very bad case. Been off for two years and still having skin issues. Humira weakens your immune system and in turn you can develope various issues like I did. My shingles was so bad that I wanted to kill myself. Although Humira did not cause the shingles, my immune system was weak so I had an extra bad case. Wanted the shingles shot to help prevent another case but learned I had to be off Humira for 6 months before I could get shot. I went off the shot during the time of shingles outbreak because the doctors said it would worsen the shingles. After 6 months I got my shot and have chosen not to go back on Humira. It’s been two years and I am taking alternative medicine and I am much more careful about avoiding foods and stressful situations that might cause a flare up. Doctors warned me that I would have to do Humira again if these alternative medicines don’t work. I will fight the battle to avoid this. I am tired of having warts frozen, tired of Moh’s surgery for skin cancers. I do truly believe that continuous psychological analysis of one’s ailment plays a large role in keeping down flare ups in any illness. I personally play my own cheerleader in every waking moment of every day to create a positive attitude about my condition. This helps me a lot.

I was on humira for 4 months. At 3 months I developed pustular psoriasis (which I never had before) all over my body. I was advised to continue taking it. The injections quit working all together after my 7th injection. My arthritis returned worse than ever.. In joints not previously affected (my knees were once the only problem, but now my fingers, wrists, elbows, knees, ankles, etc are chronically in pain and stiff). I also have spasms all down my esophagus that hurt like hellO and make eating difficult. It also has caused all over muscle pain and weakness. Humira is responsible and shouldn’t be prescribed to people. I’m now way worse than I had ever been before. This drug has been life changing, and not in a good way! I want to warn anyone considering it to think twice.. Your doctor will tell you some bs about it being the natural progression of the disease, but that’s a load of shi_!! Rheumatoid arthritis does not progress to esophageal spasms so severe u assume the fetal position and refuse to eat for days at a time, and it doesn’t make ur muscles so weak u can’t raise ur arms above ur head or take a shirt off. So eff u humira!!

My husband started taking Humira for psoriatic arthritis. He took a total of three injections, one every 2 weeks. After the third injection, he began feeling extremely tired and slept for hours on end. We took him to the hospital for this and that he felt like he was going to die. After 2 separate visits to 2 separate hospitals and test after test, we ended up in a large hospital in the city. They finally did a spinal tap and found inflammation in his cerebellum and diagnosed him with Aseptic Meningitis and Encephalitis drug induced from humira. He has constant dizziness, blurred vision, speech problems, personality changes,Ataxia, poor balance and coordination. He is completely dependent for all activities of daily living. He is 53 years old. He has gone thru extensive therapy for 3 weeks and now at home. He sleeps most of the day due to the disease, we are unsure what damage is permanent but we never expected this from a drug after only 3 doses. I am now not working because I have to take care of him and he will not be working for quite sometime if ever.

Husband used Humira 2yrs then Enbrel over 1 yr. Slowly lost much weight, was getting black like blotches on arms, started just not feeling good, one day started running high fever, hard time breathing, got scared & called ambulance, he died that night. When on Humira he broke ankle, compound fracture. For 6 wks I fed him 35 grand, interveinious anti biotic. It took over yr. for skin to barely grow over the wound, and that was with mos. of wound vac. I watch that medicine slowly take him down but when it did, it was fast. Death certificate said sepsis shock. Where did this terrible infection that was in his blood come from and why did he have NO IMMUNE system to help fight it off. I need an attorney, running out of time And I forsee a Lot more of this to start surfacing after long term use, like the 4 yrs that my 40 yr husband took . it took my life from me as well. And this should not be. People shouldn’t be used as ginea pigs for drug companies , they get filthy rich and I got heartbroken & left alone. They need be responsible for they knew the side effects were bad or they wouldn’t advertise it while doctors are paid to say that it won’t hurt you, we’ve not had any problems with it. It’s all a scam!

I have only had one injection but it knocked me out and I am not taking it anymore. Went to see my PCM and he said I only have minor inflammation not psoratic arthritis. I am going to get a second opinion from another rhemy. Just don’t feel right since he would not show me my XRAYS or go over my labs when I asked how bad it was he said I had minimal inflammation and was at the beginning stages then why would HUMIRA be the first drug I take.

I took humira back in 2006 or 2007 for crohns disease. I am now having vision problems that has started to impair my vision.

Thank you

I have been taking Humira for the past 3 years. It has done nothing to help me. Now I am battling breast cancer. No family history of breast cancer. I have 3 sisters and none of them have any signs of cancer. I think it needs to be looked into. It is odd that there is no history and then boom, I have cancer. My life since Febuary has been a living Hell. I go in a couple of weeks for geneitc testing and will know for sure. I am not very happy right now and scared for my kids and I.

I took humira for three months first day four needles two weeks later two needles and every week one needle. Started in feb till end of April. Ended up with blisters all over my hands and feet and psoriasis over my legs feet arms. It gave me blister for psoriasis and server nerve damage to my hands and feet. 4 months later and tons of meds light therapy and 41 pecription creams it’s starting to get better but it keeps returning. The nerve pain has not improved. I never feel cold always hot. I contacted the company was told that now that I stopped the meds they don’t need to follow up with how I am doing. Humira dropped me the day I stopped taking the needles. My life has changed I get sick so fast my immune system sucks and my energy is gone. Expecting my first grandchild and I am scared that my health will keep me from being the grandparent I want to be. I have homecare 5 days a week and can’t even wash my own hair because my hands and nails are so infected with blisters that it’s to painful. Went from being totally independent to needing so much help. Wow one med changed my life to the point that sometimes I think that is it worth living like this. This med ruin my life.

I’ve been on Humira 40mg every 10 days and I feel better than I have since mid twenties. No side effects to speak of. Sometimes I take a wonderful 4 hour nap the day of or the day after injection.
I have Ankylosing Spondylitis HLA-B27 type. This form is very rare in women.

I have a woman from Humira coming out to my house tonight for a consult and to show me how to do the injections. I always believed that they send these so called…ambassadors out to cover their own butts once something goes wrong, as it will be these ambassadors who seem so caring that will be the first to throw us under the bus. Humira now sits in my fridge waiting for me to take my first dosage tonight and after reading so many horrific stories, I will not be taking it. So sorry for all of your struggles and losses yet so grateful for you sharing your stories.
~CJ

I have been on Humira for 2 1/2 months. What seemed like a simple rash on my hands turned into my WHOLE entire body covered with red itchy burning rashes. Dermatologist prescribed medicine that my insurance has to authorize that takes 3 days which means I have to suffer for another week. And the cream costs $30. This is so unfair that my body has to go through this change for several months. It literally hurts to walk. Im just so effing pissed.

I am on Humira now.After reading this I will not take a shot today.I went to my eye doctor complaining about symptom seeing things.last July I thought I was going to die with coughing.Short of breath.I tell the doctors they say “they don’t think Humira has any thing to do with it”

My uncle John died from this medication.

I took humira for 6 years and developed impetigo, then perioral dermatitis, then pink eye, recurrent colds and flus, molloscum contagiosum, and now potentially genital warts (I’ve been off the medication for 2.5 years.) These side effects are common my specialist said after I experienced the skin infections…not at all related to the primary reason for taking the medication. This is so frustrating that medication we trust our doctors to offer us can do more harm than good.

I was on Humira for approximately a year and 4 months. My rheumatologist put me on it to help with autoimmune issues and listed that I have RA, but I don’t. I had reservations about taking it and could kick myself for not listening to my intuition.

In Jan 2023, I started having new symptoms and worsening existing symptoms. New symptoms were numbness and tingling in my right leg, balance issues, clumsiness, forgetting conversations or where something happened, urinary retention, and tingling in my hands. Worsening symptoms were mild brain fog progressing to cognitive and language issues (not all the time, but enough to be concerning), chronic fatigue that became profound fatigue, urinary urgency and frequency that became much worse, and eye pain and redness from iritis that began to hurt even though I didn’t have active iritis.

All in all, my body was a mess.

I got a CT, which led me to getting MRIs. I had moderate white matter issues and a lesion. A lumbar puncture showed elevated IgG levels and protein in my CSF. My neurologist referred me to Cleveland Clinic and I have been told to discontinue Humira immediately.

I had no idea Humira could cause this to happen. The past 8 months have been painful, scary, uncomfortable, stressful, and exhausting. What’s even more concerning and infuriating is that I was never warned and moreover, I should never have been put on Humira to begin with. I don’t have one single disease, syndrome, or disorder it treats.

I hope more doctors will warn patients and they company will do a better job educating patients. Had I known, I could have stopped taken the medication in Jan when my symptoms started.

Praying that everyone impacted by this overcomes the damage done.🫶

I took Humira when I was first diagnosed with RA my second dose my left calf swole up. I called the doctor went in they did test for blood clot said oh it’s ok it’s not from humira. I had shortness of breath and now my vision is bad along with leaky vein in my
Left leg.

After taking humira, i was diagnosed with ALS, nystagmus, and a major lung infection i now believe these were all caused by this awful drug.